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Can’t Work Due to Fibromyalgia in the UK: Understanding Your Rights

Fibromyalgia is a chronic pain condition that affects millions of people worldwide. In the UK, it is estimated that around 2-4% of the population suffers from fibromyalgia, with the majority being women. The condition causes widespread pain, fatigue, and other symptoms that can make it difficult for people to work and carry out daily activities.

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For those living with fibromyalgia in the UK, the inability to work due to their condition can be a significant source of stress and financial strain. The condition is recognized by the UK government as a disability, and those who are unable to work due to fibromyalgia may be eligible for disability benefits. However, the process of applying for these benefits can be complex and time-consuming, and many people with fibromyalgia may struggle to navigate the system.

Understanding Fibromyalgia

Fibromyalgia is a chronic pain condition that affects millions of people worldwide, including those in the UK. It is a complex disorder that causes widespread pain, fatigue, and increased sensitivity to touch, temperature, and pressure.

The exact cause of fibromyalgia is unknown, but it is believed to be related to changes in the central nervous system and brain. Some researchers also suggest that genes, injury, or trauma may play a role in the development of fibromyalgia.

One of the most common symptoms of fibromyalgia is chronic pain, which can be felt throughout the body. This pain can be described as a deep, aching sensation that is often accompanied by stiffness and soreness. Other symptoms of fibromyalgia include sensitivity to light and temperature, as well as fibro fog, which is a condition that causes cognitive difficulties, such as memory loss and difficulty concentrating.

Despite the challenges that come with fibromyalgia, there are ways to manage the symptoms and improve quality of life. Treatment options may include medication, physical therapy, and lifestyle changes, such as exercise and stress management techniques.

It is important to seek medical attention if you suspect you may have fibromyalgia, as early diagnosis and treatment can lead to better outcomes. With the right care and support, those with fibromyalgia can learn to manage their symptoms and lead fulfilling lives.

Diagnosis and Treatment

Diagnosing fibromyalgia can be challenging, as there are no specific tests or scans that can confirm the condition. Instead, doctors rely on a combination of symptoms and medical history to make a diagnosis. It is important to see a GP or a specialist who is familiar with the condition to get an accurate diagnosis.

Once diagnosed, treatment for fibromyalgia usually involves a combination of approaches. This may include medication to manage pain, such as over-the-counter painkillers or prescription drugs. Antidepressants may also be prescribed, as they can help to regulate the levels of certain chemicals in the brain that are associated with pain and mood.

In addition to medication, other treatments may be recommended, such as cognitive behavioural therapy (CBT) or acceptance and commitment therapy (ACT). These therapies can help people with fibromyalgia to manage their symptoms and improve their quality of life. Occupational therapists and physiotherapists may also be involved in the treatment process, providing advice and exercises to help manage pain and improve mobility.

Self-management is also an important part of fibromyalgia treatment. This may involve relaxation techniques, mindfulness, and exercise. It is important to find a balance between rest and activity, and to pace oneself to avoid overexertion. Pain clinics may also be helpful for people with fibromyalgia, providing access to a range of treatments and support services.

Impact on Work and Employment

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Fibromyalgia can have a significant impact on a person’s ability to work and maintain employment. The symptoms of fibromyalgia, such as chronic pain, fatigue, and cognitive difficulties, can make it difficult to perform job duties and maintain productivity.

Employers have a responsibility under the Equality Act 2010 to make reasonable adjustments to support employees with disabilities, including those with fibromyalgia. This may include flexible working hours, adaptation of the workstation, and changes to job duties.

If an employee with fibromyalgia needs time off work, they may be eligible for disability leave or sick leave. They may also be able to access support through the Access to Work scheme, which provides funding for workplace adaptations and support.

Occupational health can play an important role in supporting employees with fibromyalgia. This may involve carrying out a risk assessment to identify potential workplace hazards and making recommendations for reasonable adjustments to support the employee.

Returning to work after a period of absence due to fibromyalgia can be challenging. It is important for employers to work with the employee to develop a return-to-work plan that takes into account their needs and limitations.

Overall, it is important for employers to be understanding and supportive of employees with fibromyalgia. By making reasonable adjustments and providing appropriate support, employers can help employees with fibromyalgia to maintain employment and achieve their full potential in the workplace.

Support and Resources

Living with fibromyalgia can be challenging, but there are many resources available to help individuals manage their symptoms and improve their quality of life. Below are some support and resources options for those with fibromyalgia in the UK:


  • Fibromyalgia Action UK: This is a charity organization that provides information, support, and advice to people with fibromyalgia. They have a helpline, online forum, and local support groups across the UK.



  • Healthcare Professionals: Individuals with fibromyalgia are encouraged to work with their healthcare professionals to develop a treatment plan that is tailored to their needs. This may include medications, physical therapy, and lifestyle changes.



  • Support Groups: Many individuals with fibromyalgia find it helpful to connect with others who are going through similar experiences. There are many local and online support groups available, such as those provided by Fibromyalgia Action UK.



  • Helpline: Fibromyalgia Action UK provides a helpline that individuals can call for information, advice, and support. The helpline is staffed by volunteers who have personal experience with fibromyalgia.



  • Information: There are many resources available online that provide information about fibromyalgia, including symptoms, causes, and treatment options. Fibromyalgia Action UK provides a wealth of information on their website, as well as links to other reputable sources.


Overall, it is important for individuals with fibromyalgia to know that they are not alone. There are many resources available to help them manage their symptoms and improve their quality of life.

Living with Fibromyalgia

Living with fibromyalgia can be challenging and frustrating. It is a long-term condition that affects the muscles and bones, causing pain and tenderness throughout the body. People with fibromyalgia often experience other symptoms such as fatigue, sleep problems, headaches, and stomach pain.

Fibromyalgia is more common in women than men and can affect people of any age. It is often associated with other conditions such as irritable bowel syndrome (IBS), arthritis, rheumatoid arthritis, depression, anxiety, and stress.

Managing fibromyalgia can be difficult, but there are ways to cope with the symptoms. Stress management techniques, such as meditation and yoga, can help reduce stress levels and improve overall health. Memory aids and concentration techniques can also be useful for those experiencing brain fog or memory problems.

Living with fibromyalgia can be frustrating, particularly when it comes to work. Many people with fibromyalgia find it difficult to work due to the pain and fatigue they experience. It can be helpful to speak to an occupational therapist or disability advisor to discuss ways of managing work with fibromyalgia.

Coping with fibromyalgia can be challenging, but it is important to remember that there is support available. Mental health support can be particularly useful for those struggling with low mood or anxiety. It is important to seek help if you are struggling to cope with your symptoms.

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